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Peris Sifre, María LuisaAuthor

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Natural history of patients with venous thromboembolism and hereditary hemorrhagic telangiectasia. Findings from the RIETE registry

Publicated to:Orphanet Journal Of Rare Diseases. 14 (1): 196- - 2019-08-09 14(1), DOI: 10.1186/s13023-019-1172-8

Authors: Riera-Mestre, Antoni; Maria Mora-Lujan, Jose; Trujillo-Santos, Javier; Del Toro, Jorge; Nieto, Jose Antonio; Pedrajas, Jose Maria; Lopez-Reyes, Raquel; Soler, Silvia; Ballaz, Aitor; Cerda, Pau; Monreal, Manel; Monreal, Manuel; Prandoni, Paolo; Brenner, Benjamin; Farge-Bancel, Dominique; Barba, Raquel; Di Micco, Pierpaolo; Bertoletti, Laurent; Schellong, Sebastian; Tzoran, Inna; Reis, Abiiio; Bosevski, Marian; Bounameaux, Henri; Maly, Radovan; Verhamme, Peter; Caprini, Joseph A.; Hanh My Bui; Adarraga, M. D.; Agud, M.; Aibar, M. A.; Alcalde-Manero, M.; Alfonso, J.; Amado, C.; Arcelus, J., I; Ballaz, A.; Barba, R.; Barbagelata, C.; Barron, M.; Barron-Andres, B.; Blanco-Molina, A.; Camon, A. M.; Canas, I; Castro, J.; Cerda, P.; de Miguel, J.; del Toro, J.; Demelo, P.; Diaz-Pedroche, C.; Diaz-Peromingo, J. A.; Dominguez, Im; Escribano, J. C.; Falga, C.; Fernandez-Capitan, C.; Fernandez-Criado, M. C.; Fidalgo, M. A.; Flores, K.; Font, C.; Font, L.; Furest, I; Garcia, M. A.; Garcia-Bragado, F.; Garcia-Raso, A.; Gavin-Bianco, O.; Gavin-Sebastian, O.; Gil-Diaz, A.; Godoy-Diaz, D.; Gomez, V; Gomez-Cuelvo, C.; Gonzalez-Martinez, J.; Grau, E.; Guirado, L.; Gutierrez, J.; Hernandez-Blasco, L. M.; Jara-Palomares, L.; Jaras, M. J.; Jimenez, D.; Joya, M. D.; Jou, I; Lalueza, A.; Lecumberri, R.; Lima, J.; Llamas, P.; Lobo, J. L.; Lopez-Jimenez, L.; Lopez-Meseguer, M.; Lopez-Miguel, P.; Lopez-Nunez, J. J.; Lopez-Reyes, R.; Lopez-Saez, J. B.; Lorente, M. A.; Loring, M.; Lumbierres, M.; Madridano, O.; Maestre, A.; Marchena, P. J.; Martin-Martos, F.; Martinez-Baquerizo, C.; Martinez-Garcia, M. A.; Mellado, M.; Moises, J.; Monreal, M.; Morales, M., V; Munoz-Bianco, A.; Nieto, J. A.; Nunez, M. J.; Olivares, M. C.; Olivera, P. E.; Ortega, C.; Osorio, J.; Otalora, S.; Otero, R.; Panadero-Macia, M.; Parra, V; Pedrajas, J. M.; Pellejero, G.; Perez-Ductor, C.; Perez-Rus, G.; Penis, M. L.; Pesantez, D.; Porras, J. A.; Riera-Mestre, A.; Rivas, A.; Rodriguez-Cobo, A.; Rodriguez-Matute, C.; Rosa, V; Rubio, C. M.; Ruiz-Artacho, P.; Ruiz-Sada, P.; Sahuquillo, J. C.; Sala-Sainz, M. C.; Salgueiro, G.; Samperiz, A.; Sanchez-Martinez, R.; Sanchez-Munoz-Torrero, J. F.; Segui, E.; Soler, S.; Suarez, S.; Surinach, J. M.; Tolosa, C.; Torres, M., I; Trujillo-Santos, J.; Uresandi, F.; Valero, B.; Valle, R.; Vidal, G.; Aar, C.; Villares, P.; Gutierrez, P.; Vazquez, F. J.; Vilaseca, A.; Vanassche, T.; Vandenbriele, C.; Verhamme, P.; Hirmerova, J.; Maly, R.; Salgado, E.; Benzidia, I; Bertoletti, L.; Bura-Riviere, A.; Debourdeau, P.; Courtois, M. C.; Farge-Bancel, D.; Helfer, H.; Hij, A.; Mahe, I; Moustafa, F.; Schellong, S.; Braester, A.; Brenner, B.; Tzoran, I; Bilora, F.; Bortoluzzi, C.; Ciammaichella, M.; Dentali, F.; Di Micco, P.; Fermi, P.; Imbaizano, E.; Lodigiani, C.; Maida, R.; Mastroiacovo, D.; Mumoli, N.; Pace, F.; Pesavento, R.; Pomero, F.; Prandoni, P.; Quintavalla, R.; Rocci, A.; Rota, L.; Siniscalchi, C.; Tiraferri, E.; Tufano, A.; Visona, A.; Hong, Vo N.; Zalunardo, B.; Kalejs, R., V; Kigitovica, D.; Skride, A.; Bosevski, M.; Zdraveska, M.; Bounameaux, H.; Mazzola, L.; Capnini, J. A.; Tafur, A. J.; Bui, H. M.;RIETE Investigators

Affiliations

Fundacio Hosp Olot & Comarcal Garrotxa, Dept Internal Med, Girona, Spain - Author
Hosp Clin San Carlos, Dept Internal Med, Madrid, Spain - Author
Hosp De Galdakao, Dept Pneumonol, Galdakao, Vizcaya, Spain - Author
Hosp Gen Virgen De La Luz, Dept Internal Med, Cuenca, Spain - Author
Hosp Univ & Politecn La Fe, Dept Pneumonol, Valencia, Spain - Author
Hosp Univ Bellvitge, Bellvitge Biomed Res Inst IDIBELL, HHT Unit & VTE Unit, Internal Med Dept,Hosp Llobregat, C Feixa Llarga S-N, Barcelona 08907, Spain - Author
Traslational Medicine. Cardiovascular, Respiratory and Systemic Diseases and cellular aging Program. Systemic Diseases and Ageing - Author
Univ Autonoma Barcelona, Hosp Germans Trias & Pujol Badalona, Dept Internal Med, Barcelona, Spain - Author
Univ Barcelona, Fac Med & Hlth Sci, Barcelona, Spain - Author
Univ Catolica Murcia, Hosp Gen Univ Santa Lucia Cartagena, Dept Internal Med, Murcia, Spain - Author
Univ Gregorio Maranon, Hosp Gen, Dept Internal Med, Madrid, Spain - Author
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Abstract

Keywords

epistaxisfactor-viiihemorrhagic hereditary telangiectasiahhtoutcomespulmonary embolismrare diseasestherapyvenous thromboembolismDeep venous thrombosisHemorrhagic hereditary telangiectasiaPulmonary embolismRare diseasesRendu-osler-weberVenous thromboembolism

Quality index

Bibliometric impact. Analysis of the contribution and dissemination channel

The work has been published in the journal Orphanet Journal Of Rare Diseases due to its progression and the good impact it has achieved in recent years, according to the agency Scopus (SJR), it has become a reference in its field. In the year of publication of the work, 2019, it was in position , thus managing to position itself as a Q1 (Primer Cuartil), in the category Medicine (Miscellaneous).

From a relative perspective, and based on the normalized impact indicator calculated from the Field Citation Ratio (FCR) of the Dimensions source, it yields a value of: 4.91, which indicates that, compared to works in the same discipline and in the same year of publication, it ranks as a work cited above average. (source consulted: Dimensions Jun 2025)

Specifically, and according to different indexing agencies, this work has accumulated citations as of 2025-06-19, the following number of citations:

  • WoS: 12
  • Europe PMC: 9
  • OpenCitations: 15

Impact and social visibility

From the perspective of influence or social adoption, and based on metrics associated with mentions and interactions provided by agencies specializing in calculating the so-called "Alternative or Social Metrics," we can highlight as of 2025-06-19:

  • The use, from an academic perspective evidenced by the Altmetric agency indicator referring to aggregations made by the personal bibliographic manager Mendeley, gives us a total of: 62.
  • The use of this contribution in bookmarks, code forks, additions to favorite lists for recurrent reading, as well as general views, indicates that someone is using the publication as a basis for their current work. This may be a notable indicator of future more formal and academic citations. This claim is supported by the result of the "Capture" indicator, which yields a total of: 62 (PlumX).

With a more dissemination-oriented intent and targeting more general audiences, we can observe other more global scores such as:

  • The Total Score from Altmetric: 8.65.
  • The number of mentions on the social network Facebook: 1 (Altmetric).
  • The number of mentions on the social network X (formerly Twitter): 15 (Altmetric).

It is essential to present evidence supporting full alignment with institutional principles and guidelines on Open Science and the Conservation and Dissemination of Intellectual Heritage. A clear example of this is:

  • The work has been submitted to a journal whose editorial policy allows open Open Access publication.